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Helping your troubled teen after they turn 18

Helping your troubled teen after they turn 18
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Most young people aren’t ready for adulthood by 18 years of age, but your troubled teen is especially unprepared. By 18, their legal status instantly changes to “adult” and they are free to fail at life’s countless tests. Your hands are tied and you can’t keep your son or daughter safe from themselves any more.

Pace yourself for a marathon

Your job as parent is far from over.  Not surprisingly, parenting an 18+ year old will feel the same as when they were 17 years 11 months old.  They’ve been behind their peers for a long time–emotionally or socially or academically. You’ve done everything possible to get them ready for adulthood, but they simply aren’t!  For troubled teens, the teen years last into the mid-20’s or longer. And this is really scary; suicide rates across all age groups are highest for people aged 16-24.  It’s the period of greatest stress, whether the person is suicidal or not.

Many people with disorders aren’t able to take full responsibility for themselves until their early 30’s.

Over the past 16 years, I’ve asked this question of people with mental health disorders, their parents and siblings and children, and their friends:  “At what age did (you, your loved one) make the conscious choice to take responsibility for themselves: treatment, income or job, living on their own, choosing to associate with healthy people. I asked dozens and dozens of people. Their answer? Every single one told me they or their loved one didn’t turn things around until they were between the ages of 29 – 34.

True story: a co-worker once shared about his bipolar disorder and his years of substance abuse and hardships. I would never had guessed this grounded stable person had a troubled past. I asked when he turned his life around; it was 30. I asked what motivated him.  His answer? “I couldn’t avoid it anymore. I ran out of excuses. I hit rock bottom too many times.”

The questions to ponder are how much to sacrifice and how much to let go.  There needs to be a balance.

Parents have a tendency to rescue their adult son or daughter when a crisis befalls because  it’s so hard for the child to recover from set-backs.  But rescuing too much makes them more dependent on the parents (or adult siblings).  Pressuring a troubled teen to be an “adult” when they are not ready may lead to their dependence on others who might make their lives worse.  Or they’ll cope with drugs or alcohol, or risky choices, or give up.

I know of a couple in their 70’s who’d rescued their troubled 34-year-old daughter her entire life, and faced cutting her off because they couldn’t manage anymore.  They were heartbroken to let her go, painfully afraid she would become homeless or suicidal, and deeply regretful they unwittingly undermined her capacity for independence.  Don’t let this happen to you.

The first challenge is deciding where they’ll live.

As with any troubled teen, they must become independent eventually.  It may be a tough call for you:  bear the stress if they live with you? or worry when they leave your protection, possibly forever?  Ironically, your adult child must be better than ‘normal’ young people at managing life because they have so much more to worry about.  Besides the usual adult responsibilities, add self-monitoring for mental and emotional stability, taking meds or obtaining therapy, and disciplining themselves to stick with dozens of choices that support their well-being (diet, exercise, healthy friendships, education or work, financial stability…).

If your troubled teen of 18 must live at home full or part-time, change your rules and expectations. Rules can include a requirement for ongoing mental health care. Your troubled teen must transition to becoming your guest who stays at your invitation and a renter who contributes to the household and follows the landlord’s rules.  You’ll need discipline to step back and respect their privacy and (reasonable) choices and activities.  This may not be easy to achieve–you’ll make many compromises.

In the eyes of the law, you are not responsible for them anymore.

You really aren’t.  In fact, you have the right to banish your 18-year-old from your home and change the locks on the doors.  The parents who do this are usually in fear for their physical and emotional safety–not because they don’t care.  If this describes you, it’s understandable and forgivable if you feel forced into this step.  But know this, things change.  Your adult child will change; banishment is not forever.

There’s good news. Adults have more options for support.

Ironically, your troubled teen, by 18, will have more access to services than ever, and you’ll both get the support you’ve desperately needed.

  • In the U.S., people with mental health problems are protected from job/housing/educational discrimination by laws that protect the disabled.
  • insurers are required to provide mental health care on par with all other treatments and services.
  • Mental health advocacy groups support adults by offering support groups, referrals to safe housing or appropriate job opportunities, social connections with safe accepting peers, and legal and legislative advocacy.
  • Educational institutions have special departments solely for supporting students with disabilities, and that includes troubled young adults.

This is what your troubled teen needs to function after 18, listed in order of value:

  1. A constant, supportive family (that sets boundaries and asserts high-as-possible expectations)
  2. Support from peers and mentors or counselors
  3. A job or continuing education
  4. Ongoing mental health care
  5. A safe living situation

Adjust your expectations for how quickly they’ll progress.

Parents with ‘normal’ 18 year olds gradually revise their relationship with them, becoming a mentor and peer rather than a parent.  You can’t do that yet; your challenge is to flow between the role of parent, disciplinarian, social worker, and therapist until they are ready.

You can do this.  Stay patient.  Keep a bridge built.  They’ll eventually grow up.

–Margaret

 

Please rate this post and comment.  Your thoughts and experiences will help others who read this article.

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Filed under adult, mental illness, parent rights, parenting, suicide, teenagers, teens, troubled children

Your rights as the parent of a teen with a mental disorder

Your rights as the parent of a teen with a mental disorder
7 votes

You really do have more rights than you think.

Some background: In a previous blog article on the subject of rights, I described how parents and caregivers can be shocked to learn that their troubled teenager has the right to refuse treatment, Teen rights versus parent rights when the teen has a mental disorder.

What if your teen refuses treatment?  They usually get worse, sometimes much worse. Tragically, if your teen experiences psychosis for a long period, such as in schizophrenia or bipolar disorder, their brain degenerates just as in Alzheimer’s disease.

If a teenager had any other illness besides a behavioral disorder, withholding treatment would be considered child abuse and grounds for removing the child from the home.

Laws in many countries err on the side of protecting a person’s civil rights, but a teenager is likely not ready to take the responsibility that goes along with these rights. An excellent site covering laws pertaining to Special Education Law is Wrightslaw. Click on “Topics from A to Z.”

  • For safety and health reasons, you can search your teen’s room and remove or lock-up risky items like drugs, weapons, razors, pornography, or anything affecting health (rotten food, unclean garments, chemicals). Caution: this can destroy trust if done inappropriately! Inform your teen only if you find and remove unsafe items but otherwise leave everything else alone! If you call the police regarding illegal items, and if your child is charged, their criminal record can be expunged by age 18.
  • You can set any curfew time you think appropriate, and you do not have to adhere to curfew times used by law enforcement. Suggestion: compare with other parents’ curfews. Your teen will more likely follow rules that his or her peers follow.
  • You can monitor everything in your home, and on your computer and phone. You can limit cell phone services, and get GPS tracking on the phone and in the car. Prevention is more effective if your teen is informed about this, and it prevents others from taking advantage of your child, too.
  • You can report your concerns to anyone: teachers, other parents, and the local police precinct.
  • You can search for your child by calling other parents or businesses, or visiting their friends’ homes, or searching public places where your child might be.
  • You can and should call the police if your child runs away, or if your child is being harbored by someone who wants to ‘protect’ them. It is illegal to harbor runaways and subject to criminal charges.
  • You can notify anyone who encourages your teen to run away or stay away from home, or who takes your teen with them without your permission, that this is custodial interference and also subject to criminal charges.

You have the right to be involved in treatment

“Communication between providers and family members needs to be recognized as a clinical best practice.”*

  • You have the right to contact any mental health professional directly, and provide information relevant to your child, your family (e.g. marital conflict), and your family’s needs (e.g. bullied siblings). The professional can legally receive and document this information, but may not be able to discuss it with you.
  • You have the right to communicate freely and openly with a practitioner or teacher about anything you both already know—no confidentiality exists.
  • You have the right to schedule your own appointment with a professional without your teenager, and ask for information about how to get help for yourself and your family, and what kinds of help you may need.
  • You have the right to information about your child’s diagnosis and behavioral expectations, the course of your child’s treatment, and how you should interact with your child at home.
  • You have the right to a second opinion. And you have the right to change treatment or refuse treatment based on that second opinion.
  • You have to right to participate fully in medical decisions about your child. For example, you have the right to ask a doctor to stop or change medication or treatment that is creating behavior problems or side effects, which harm your ability to manage your teen.
  • You have the right to “information about the treatment plan, the safety plan, and progress toward goals of treatment.” *

“While confidentiality is a fundamental component of a therapeutic relationship, it is not an absolute.”*

“Medical professionals can talk freely to family and friends, unless the patient objects after being notified of the intended communication. No signed authorization is necessary.”

–Susan McAndrew, Deputy Director of Health Information Privacy, U.S. Department of Health and Human Services

Teachers and mental health professionals have leeway with confidentiality Providers often misunderstand the Health Information Privacy and Accountability Act (HIPAA), which defines what must be kept confidential. Many also misunderstand the Family Educational Rights and Privacy Act (FERPA) and state laws that govern confidentiality, so they tend to err on the side of confidentiality. However, the American Psychiatric Association states:

“Disclosures can sometimes be justified on the grounds that they are necessary to protect the patient. For instance, it is generally acceptable for a psychiatrist to warn a patient’s family or roommate when the patient is very depressed and has voiced suicidal thoughts”* or plans to harm others.

Professionals should provide explicit information about safety concerns: such as the warning signs of suicide; the need to adhere to medication and other treatment; an explanation of how your teen’s disorder can impair judgment; an explanation of reasons the teen must avoid substances like alcohol and drugs (including some over-the-counter drugs); and the need to remove the means for suicide, especially firearms, sharp objects, matches, chemicals, etc.

How doctors and therapists manage confidentiality

Their basic philosophy is to do what is in the best interest of their patient. For example, if the teen is in an abusive family situation or seeking care only on the condition of confidentiality, their privacy will be protected. “The default position is to maintain confidentiality unless the patient gives consent… However, [family members or friends] may need to be contacted to furnish historical information…” If the practitioner determines that the teen is (or is likely to become) harmful to him- or herself or to others, and will not consent, then they are… “justified in breaking confidentiality to the extent needed to address the safety of the patient and others.”  –The American Medical Association, 2001, “The Principles of Medical Ethics With Annotations Especially Applicable to Psychiatry.”

A good professional will be honest with your teen, and tell them that they will communicate with you based on what you already know. They will also tell your child that suicide or violence risk will always be communicated to you and/0r an emergency medical service. From everyone’s perspective “It is always better to defend an inappropriate disclosure than to defend a failure to disclose with bad outcome (e.g. injury or death).”

Giving a teenager with behavioral problems the sole right to make critical medical decisions is crazy!

I hope that families and mental health advocates can someday agree on how to maintain civil rights without letting a person control their future when they are not in their right mind. Until then, work with the system as best you can. I find that teachers and practitioners do their best to help families despite the restrictive civil rights and confidentiality mandates. Good luck.

How am I doing? Please rate this article, thanks. Margaret

* Reference“The Clinician Should Maintain a Confidential Relationship With the Child or Adolescent While Developing Collaborative Relationships With Parents, Medical Providers, Other Mental Health Professionals, and Appropriate School Personnel,” developed by Jerry Gabay JD and Stewart S. Newman MD. The authors would like to acknowledge the support of the Oregon Council of Child and Adolescent Psychiatry for their support of this effort.

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Filed under confidentiality, discipline, parent rights, teenagers

Teen rights vs. parent rights when the teen has a mental disorder

Teen rights vs. parent rights when the teen has a mental disorder
3 votes

 If you’re a parent of a troubled teen, how much decision making power should your child have?

How can your teenager possibly make decisions for themselves if they’re brains aren’t functioning normally?  They hate you, or they say and do crazy things for unfathomable reasons.  You want to guide them with incentives and consequences but these haven’t worked.  You’re traumatized by their history of unstable behavior and it affects your thinking.  Perhaps you get stuck in a power struggle, or you give up power because asserting your authority just puts gasoline on their fire.  You know they can make good on serious threats, such as running or causing serious personal or material damage.  Or they may completely fall apart.

Decent, caring parents, who aren’t out to “fix” or punish their child, often feel their teen has too many rights:

Problem – A teen’s statements to treatment providers are completely confidential after age 14.  Privacy is important, and the therapist needs the young person’s trust to help them with therapy, but some information could be shared with parents on a case-by-case, “need to know” basis.  A parent should be able to partner with the therapist, so they can structure interactions at home that support therapeutic goals.  For example, if the teen talks about dangerous activities with a best friend that the parent doesn’t know about, I think the parent could be coached to appropriately reduce contact with this friend or defuse the dangerous influence they have over the teen.  If a therapist can’t reveal this much, can’t they at least tell a parent what to watch for, what to set boundaries on?  How to respond?

 Problem – A teenager has the right to refuse medication or therapy at age 14 (in practice, most providers are reluctant to force treatment at any age).  But if their refusal leads to a serious crisis, I know from experience that most parents have no option but calling 911 or using force to keep themselves and others safe.  Yet force undermines the parent-child relationship, and has lead to undeserved charges of child abuse.

Problem – A young person has the right to refuse school attendance even when there are consequences, and the parent can be held liable for neglect.  This is of special concern to a parent who risks losing custody to the state or to a vindictive ex.

Problem – A teenager can commit a crime and a parent can lose custody.  Sometimes crime is the only way for a young person to get the help they need, but sometimes this means they descend, step-by-step, into a justice system that presumes bad parents create bad kids.

Parents of troubled teens need greater control over their situation, and lots of outside support, to prevent losing too much to the Black Hole of their child’s disability.   The emotional, physical, and financial costs to all family members are exceptionally high.  If a parent’s authority is undermined by a society that thinks they are the kid’s problem, and an education and health care system that focuses only on the child’s needs, the parent and family see their own rights being trampled.

What about a Parent Bill of Rights?

  1. Parents and families have a right to personal safety including the safety of pets, and the right to protect themselves, their belongings, and personal space.
  2. Parents have a right to ensure and sustain their financial, social, and job stability, even if it means periodically putting aside the teen’s needs.
  3. They have the authority to create house rules based on respect, safety, and shared responsibility.
  4. And they have the right to enforce houserules and expect them to be followed.
  5. Parents and families members have the right to be human and make mistakes.
  6. Parents and families have the right to take time out for their own well being and self-care.

When does a youth’s rights supersede a parent’s rights?

The youth, because of their disability, has a right to make progress at their own pace, and choose their own path of learning.  They also have the right to reasonable family accommodations because of their different needs.  Like any human being, especially one’s child, they have the right to respect and support regardless of inconvenience.  They also have the right to negotiate for what they want, and to expect earnest efforts towards compromise.  The last, and this is very important, they have the right to choose incentives and consequences that work best for them.

You know your teen will reach adulthood and independence whether they are ready or not.  They will do what they want, perhaps suffer serious consequences, and there’s nothing anyone can do about it.  So do something about it now.

Look at the future from their perspective. Young people in the mental health system face life needs and challenges different from peers. They often don’t reach 18 without experiencing significant setbacks due to their disorders.  They have missed opportunities for the education and life skills needed for adulthood, and lack of youthful achievements that boost confidence and self-esteem. Teens and young adults with disorders may have to manage these the rest of their lives!  Once age 18 is reached, supports they’ve depended on are abruptly dropped.  They are exported to an adult system where they must start from scratch to establish a new support network that will assist them towards an independent life.  Your job is to change from parent to mentor as these new supports are developed.

What are parent responsibilities?

Acceptance:  this is the nature of your child and it’s OK.  They will still be part of the family and get your support.  Your child would function better if they could.

Positive attitude:  yours is not a lost child, there are resources out there to help them, and you really do have the energy to find and use these resources.

Realistic expectations:  brain disorders are termed “disabilities” for a reason.  You cannot expect their lives to unfold like yours did, or even like others their age.  They will redefine what progress means for them.

Support without strings attached:  your teen doesn’t owe you for the life you’ve given them, nor must they pay you back for your extra sacrifices.

Take good care of yourself so you can handle your situation.

Access and use information on the disorder and it’s treatment regime.

Learn and practice an entirely different approach to parenting.

What about youth responsibilities?

My previous post, “Youth with mental disorders demand rights!” presents a document created by members or Youth M.O.V.E (Motivating Others through Voices of Experience), a peer-to-peer organization for teens and young adults http://youthmove.us.  I have a suggestion for M.O.V.E.:  consider developing a youth Responsibilities document.  I believe young people are also responsible for acceptance and realistic expectations, like their parents, as well as being accountable for themselves.

The following list is a good place to look for other ideas.  It was developed by adult mental health consumers (part of this list has been de-emphasized because it does not yet apply to youth).  Everyone, regardless of their medical and mental health situation, should do what they can to take responsibility for their health treatment.

Adult responsibilities that could be applied to youth and young adults:

“In a health care system that protects consumers’ rights, it is reasonable to expect and encourage consumers to assume reasonable responsibilities. Greater individual involvement by consumers in their care increases the likelihood of achieving the best outcomes and helps support a quality improvement, cost-conscious environment. Such responsibilities include:

  1. Take responsibility for maximizing healthy habits, such as exercising, not smoking, and eating a healthy diet.
  2. Become involved in specific health care decisions.
  3. Work collaboratively with health care providers (teachers, parents) in developing and carrying out agreed-upon treatment plans.
  4. Disclose relevant information and clearly communicate wants and needs.
  5. Show respect for other patients and health workers (students, coworkers, neighbors, siblings).
  6. Use the health plan’s internal complaint and appeal processes to address concerns that may arise.
  7. Recognize the reality of risks and limits of the science of medical care and the human fallibility of the health care professional.
  8. Be aware of a health care provider’s obligation to be reasonably efficient and equitable in providing care to other patients and the community.
  9. Become knowledgeable about your health plan coverage and health plan options (when available) including all covered benefits, limitations, and exclusions, rules regarding use of network providers, coverage and referral rules, appropriate processes to secure additional information, and the process to appeal coverage decisions.
  10. Make a good-faith effort to meet financial obligations.
  11. Abide by administrative and operational procedures of health plans, health care providers, and Government health benefit programs.
  12. Report wrongdoing and fraud to appropriate resources or legal authorities.”

 


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